New KAFOs and AFOs

After about 2 years I am due for new orthotics.  

This Tuesday I'll be fitted for new ones through Alexian Brothers.

I will have an announcement very shortly on a trip I will be taking overseas.

After a year I am finally walking in KAFOs again!

Here I am with Christine Powills at the Alexian Brothers Rehabilitation facility.  I am finally up and walking in my KAFOs.  What is unique here is that I can now advance the right leg fairly well while doing so without a slider on my shoe.  Thank God!  I also now have freakish upper body strength, a little different from my long distance running physique.
video

Dr. Greg Brown

I would like to introduce you to Dr. Greg Brown he is my metabolic doctor.  He has gone to great lengths to help me recover strength and endurance that I lost due to my injuries.  I strongly suggest you see him if you have any health issues.  There was so much wrong with me that doctors missed and never thought of but Dr. Brown found and addressed.  Modern medicine today is years behind but Dr. Brown is not.

KAFOs

John Adamski is the orthotist who made my orthotics.  Here is a picture of him with my newly modified KAFOs:




He is a great guy who really cares about his work and patients.

KAFOs

I get my KAFOs on Friday and start gait training in them next week.

Thank God!

The handcycle.

I own a Invacare XLT Pro handcycle and like many things I purchase I found it on All of Craigslist.

It was owned by a veteran in upstate New York who no longer required it.

It has 21 speeds is extremely fast and fun to ride.

A trainer from Next Steps, Tomas Dukas is seen here riding it.
Here is a video:

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The wound is now closed!

Finally my wound on my heal is closed.

It took a long time, but now I am cleared to once again gait train.

I want to thank Dr. Steven Adelstein and his staff for the excellent care they provided me.

He is more than a doctor to me, I consider him a friend.  He went out of his way to help me heal and support my family. 

What a great doctor he is!

Saratoga cycle

I want to thank my brother Paul and his wife Nancy for purchasing the Saratoga cycle for me.



I found it by using All of Craigslist and discovered it was in Phoenix at a resale shop not far from their home. Against my wishes they went to check it out and of course they bought it and shipped it to me.  The good thing is that it was a fraction of what it would cost new and it is in really good condition.

I am using it regularly and it really helps keep me conditioned.

Thank you Paul and Nancy!

Here it is:

FES

I have some exciting news. 

Up until now Functional Electrical Stimulation (FES ) did not work on my body from my midsection down.

At NextSteps they have been using the Restorative Therapies RT-300 bike .  Electrodes are attached to my quads, abs and erector muscles in my back.

The electrical current activates the nerves and consequently contracts the muscles.

The great thing about this is that not only does it help my muscles but I also feel it as well, which provides my spinal cord with feedback.

It is all about feedback to the spinal column.  Due to the injury the pathways of communication were disrupted.  Working with this types of therapy helps retrain my spinal cord. 

The contractions are small but they seem to have gotten stronger over time. 

I own a Motomed that my dear friends Tom and Linda Salonek purchased for me. 

It is instrumental in helping me keep my leg muschles healthy.

I am going to look to add Motomed FES module so I can do this at home too.


KAFOs

Here is one of my Knee Ankle Foot Orthotics (KAFO) that I am looking foward to wearing soon.



They have been modified extensively from the original design and now allow me to unlock them from a standing position.  If you look closely you can see a white strap on the back of the thigh area that will allow me to do this.  The heal area, which has caused me problems, has been expanded to allow for more protection. 

Lakeview Polar Bear Plunge

I want to thank everyone for everything they did for my family on Saturday.  The weather was beautiful, and I am confident the water was cold!  It was amazing how the Lakeview Polar Bear Club helped us get right down to the shore.  When I am able I will also participate in the Plunge, and I look forward to that day.

I want to share a few of the photos I have from the 2013 Lakeview Polar Bear Club Plunge.

Below is a picture of Mary Cate and her mother Kerry.  Along with her husband Chris, they were the other family sponsored:


Please visit Mary Cate's website and remember her and her wonderful family in your prayers.


Here is a picture of my sister Jane and my children right after she emerged from the lake.




This shot is of Stu Vieth, the great guy who asked the Lakeview Polar Bear Club to sponsor us. 



This last picture shows just a few of the many plungers.  This was such an amazing event and thank you all, especially Brian Marchal!





The hardware in my body.

People have asked me what was put into my body after my injury.  Well I have quite a bit of titanium all over the place.

This first picture is of my right tibua.  It was smashed when I jumped up on the hood of the minivan that hit me.  The titanium rod was put in to support the bone by Dr. Matthew Jimenez.  He is a great guy who genuinely cared about me and my family. He not only runs marathons but ultramarathons too!  

 
 
This photo is of my spine from a side view.  This surgery lasted over 4 hours.  The metal put in my spine is designed to make sure it doesn't move over time and to release pressure.  Dr. Thomas Gleason performed the operation.  I will never forget how nice he was to my wife and family.  I wish more doctors were like him.
 
 
 
If you look off to the top right of this picture, you can see many white lines. These white lines are titanium clips put on my lymphatic system to stop leakage.
 
The tremendous impact of the minivan on my body not only caused the damage you just read about, but it also collapsed my right lung, broke all my ribs on my right side, lacerated my liver, ruptured my spkeen, and caused my lymphatic system to tear. This rip caused the lymphatic system to leak. Suffice it to say the leakage was serious enough to operate on. I had operations and diet changes to correct it but none worked. Finally, we decided to simply go in and clip any potential leakage points off. The surgery, which lasted over 5 hours, was done by Dr. Axel Joob who was the most colorful individual I remember from my hospital days at Advocate Lutheran General.  He has a great sense of humor and was nice to be around.
 

One last Dr. from this hospital I want to mention is Dr. Marin Marinov. He stabilized me in the Emergency Room and helped to save my life.

 
 
 


Walking suspended harness


This is Next Steps new walking suspended harness.  This apparatus helps people walk while limiting the amount of weight they bear.

Here I am using my inner thighs to work sideways along the mat.

Since the wound on my heel is not completely healed I cannot fully walk on it. I stand daily but my doctor is worried that I might damage it through the walking motion.

Hopefully, I will be up and at it in my orthotics very soon.


Merry Christmas!

I want to wish you a Merry Christmas and a Happy New Year!  Thank you all for your prayers and financial support.  We are very grateful to all of you.
Peace,
Peter

Lakeview Polar Bear Club

I want to thank the Lakeview Polar Bear Club for supporting my family. 

I am so grateful to Brain Marchal and his wonderful organization as well as Stuart Vieth who suggested us.

When I am better I will make the plunge as well.

In the meantime I look forward to meeting you at the plunge in 2013.

Victory!
Peter

http://lakeviewpolarbearclub.com/Families-2013.html